Services
Parent & Caregiver Support Services
Connect with other families who understand the challenges of living with sickle cell disease. Our support groups provide a safe space for parents and caregivers to share experiences, exchange resources, receive emotional support, and build lasting community connections through in-person and virtual meetings
Care Coordination & Hospital Support
Navigate healthcare with confidence through partnerships with hospital social workers and care coordinators. We help families access medical resources, coordinate care plans, connect with specialists, and overcome barriers to receiving quality healthcare services.
Educational Advocacy & Workshops
Empower your family with knowledge about educational rights and accommodations. Our workshops cover 504 Plans, Individualized Education Programs (IEPs), school advocacy, attendance accommodations, and transition planning to help students with sickle cell disease succeed academically. Prepare adolescents for a successful transition from pediatric to adult healthcare. Our transition guidance programs help teens develop self-advocacy skills, understand disease management responsibilities, navigate adult healthcare systems, and build independence.
Counseling & Family Wellness Services
Use this space to promote your business, its products or its services. Help people become familiar with the business and its offerings, creating a sense of connection and trust. Focus on what makes your business unique and how users can benefit from choosing it.
Respite Care & Caregiver Relief/ Toolkits
Caring for a loved one with sickle cell disease can be demanding. When available, our respite care programs offer temporary relief for caregivers, allowing them time to rest, attend to personal needs, and maintain their own health while ensuring quality care for their loved one. Access practical tools designed to simplify daily disease management. Our caregiver toolkits include symptom tracking logs, medication schedules, emergency preparedness folders, appointment organizers, and educational resources to help families stay organized and informed.
Community Partnerships & Foundation Resources
We connect families with trusted community-based sickle cell organizations and foundations that provide advocacy, education, emergency assistance, scholarships, support programs, and opportunities to engage with the broader sickle cell community
- Sickle Cell Educational Forums
- Walk-a-thons
- Other Programs & Events