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Our Mission
 To support, empower, and advocate for individuals and families affected by sickle cell disease through education, awareness, and community engagement. Committed to improving quality of life, strengthening local resources, and advancing understanding and treatment of sickle cell disease across Long Island.
Our Vision & Pillars
To unite the Long Island community where every person impacted by sickle cell disease has access to advocacy, compassionate care, equitable opportunities, and a powerful voice driving progress.
We take CARE into Action
C
Community
Building a network of support, healing, and belonging.
A
Advocacy
Promoting awareness, influencing policy, and amplifying patient voices.
R
Resilience
Honoring strength and perseverance in the face of adversity.
E
Education
Empowering through knowledge and lived experience.
Our Impact
100+
Patients Supported
We provide essential resources and compassionate care to individuals across Long Island.
1 yr down
 1 Year of Service
Our dedicated team has been advocating for better anemia care for over two decades.
Annual Educational Forum
Community Reach
We are committed to empowering every member of our Long Island community with support.
Connect With Us
We are here to support you and your family. Reach out to our Long Island initiative group for advocacy, patient support, and resources.
Sickle Cell for Long Island Initiative Group